Physical Caregiving and Stress- An examination of Mediating Role of Social Support to Caregivers of Pediatric Cancer Patients in Pakistan
DOI:
https://doi.org/10.14738/assrj.47.3017Abstract
Informal caregivers has always been a significant source of providing care to the individuals with chronic illness such as cancer. Diagnosis of cancer in children can have harmful effects on a psychosocial and emotional well-being of a caregiver. Considering the caregiver stress theory as a theoretical framework, the purpose of this research was to determine the relationship of physical caregiving to the children with cancer in relation to caregivers’ stress taking social support as a mediator. The data was collected from 100 primary caregivers of children aged 0-19 years from hospitals of Pakistan using measurement scales of Caregiving task questionnaire, Medical Outcomes Study-Social Support Survey and Modified Caregiver Strain Index. For data analysis, descriptive statistics and multivariate analysis were conducted. Findings showed positive correlation of physical caregiving and social support with caregivers’ stress as well as significant mediating effects of social support on caregivers’ stress. This suggests that social support is a resource of mental health for caregivers of children with cancer highlighting the importance of social support while designing and implementing caregiver health interventions.
References
International Agency for Research on Cancer [IARC] (2016). Agents Classified by the IARC Monographs, 1, 114.
American Cancer Society. Global Cancer Facts & Figures (2016). Atlanta: American Cancer Society.
Litzelman, K., Catrine, K., Gangnon, R., & Witt, W. P. (2011). Quality of life among parents of children with cancer or brain tumors: The impact of child characteristics and parental psychosocial factors. Quality of Life Research, 20, 1261-1269.
Abdelmoneium, A. O. and Alharahsheh, S. T. (2016). Family Home Caregivers for Old Persons in the Arab Region: Perceived Challenges and Policy Implications. Open Journal of Social Sciences, 4, 151-164.
Ugalde, A., Krishnasamy. M., & Schofield, P. (2013). Development of an instrument to measure self-efficacy in caregivers of people with advanced cancer. Psycho-oncology, 22(6), 1428-1434.
Long, K. A., & Marsland, A. L. (2011). Family adjustment to childhood cancer: A systematic review. Clinical Child and Family Psychology Review, 14, 57–88.
Carona, C., Crespo, C., & Canavarro, M. C. (2013). Similarities amid the difference: Caregiving burden and adaptation outcomes in dyads of parents and their children with and without cerebral palsy. Research in Developmental Disabilities, 34(3), 882-893.
Pearlin, L., Mullan, J. T., Semple, S. J., & Skaff, M. M. (1990). Caregiving and the stress process: An overview of concepts and their measures. Gerontologist, 30, 583-595
Whittingham, K., Wee, D., Sanders, M. R., & Boyd, R. (2013). Predictors of psychological adjustment, experienced parenting burden and chronic sorrow symptoms in parents of children with cerebral palsy. Child: Care, Health and Development, 39(3), 366-373.
Panganiban-Corales and Medina. (2011). Family resources study: part 1: family resources, family function and caregiver strain in childhood cancer. Asia Pacific Family Medicine, 10, 14.
Soylu, C., Ozaslan, E., Karaca, H., & Ozkan, M. (2015). Psychological distress and loneliness in caregiver of advanced oncological inpatients. Journal of Health Psychology, 1-11.
Bartolo, M., Luca, D. D., Serrao, M., Sinforiani, E., Zucchella, C., & Sandrini, G. (2010). Caregiver burden and needs in community neuro-rehabilitation. Journal of Rehabilitation Medicine, 42, 818–822.
Yousafzai, A., Bhutto, N., Ahmar, S., Siddiqui, M., & Selamat, S. (2011). Caregivers' stress of cancer patients in a tertiary care hospital. Journal of Postgraduate Medical Institute (Peshawar - Pakistan), 22(1), 62-65.
Asima, M. K., Rizwan, T., Arfeen, F., & Farhana, K. (2015). Quality of life of caregivers and non-caregivers. Annals of Pakistan Institute of Medical. Sciences, 11(1), 35-39.
Casale, M., & Wild, L. (2012). The relationship between social support and the health of HIV-positive caregivers of children: A review of the empirical literature, Vulnerable Children and Youth Studies: An International Interdisciplinary Journal for Research, Policy and Care, 7(3), 260-282.
Rafiyah, I., Suttharangsee, W., Sangchan, H. (2011). Social support and coping of Indonesian family caregivers caring for persons with schizophrenia. Nurse Media Journal of Nursing, 1(2), 159–169.
Maulik, P. K., Eaton, W. W., & Bradshaw, C. (2011).The effect of social networks and social support on mental health services use, following a life event, among the Baltimore Epidemiologic Catchment Area cohort. Journal of Behavioral Health Services and Research, 38(1), 29–50.
Perkins, M., Howard, V.J., Wadley, V.G., Crowe, M., Safford, M.M., Haley, W.E., Howard, G., & Roth, D.L. (2012). Caregiving strain and all-cause mortality: evidence from the Regards study. Journals of Gerontology Series B: Psychological Sciences and Social Sciences.
Wallhagen, M. I. (1990). Perceived control and adaptation in elderly caregivers. PhD Thesis.
Sherbourne, C. D., & Stewart, A. L. (1991). The MOS social support survey. Social Science & Medicine, 32(6), 705714.
Thornton, M., & Travis, S. S. (2003). Analysis of the reliability of the Modified Caregiver Strain Index. The Journal of Gerontology, Series B, Psychological Sciences and Social Sciences, 58(2), 129.
Narayan, S. M., Varghese, M., Hepburn, K., Lewis, M., Paul, I., & Bhimani, R. (2015). Caregiving experiences of family members of persons with dementia in South India. American Journal of Alzheimer's disease and other Dementias, 30(5), 508-516.
Bevans, M. F., & Sternberg, E. M. (2012). Caregiving burden, stress, and health effects among family caregivers of adult cancer patients. Journal of the American Medical Association, 307(4), 398–403.
Lund, L., Ross, L., Peterson, M. A., & Groenvold, M. (2015). The interaction between informal cancer caregivers and health care professionals: a survey of caregivers’ experiences of problems and unmet needs. Support Care Cancer, 23(6), 1719-1733.
Ellis, J. (2012). The impact of lung cancer on patients and carers. Chronic Respiratory Disease Journal, 9, 39-47.
Chambers, S. K., Girgis, A., Occhipinti, S., Hutchison, S., Turner, J., Morris, B., & Dunn, J. (2012). Psychological distress and unmet supportive care needs in cancer patients and carers who contact cancer help lines. European Journal of Cancer Care, 21(2), 213–223.
Beattie, S., & Lebel, S. (2011). The experience of caregivers of hematological cancer patients undergoing a hematopoietic stem cell transplant: a comprehensive literature review. Psycho-Oncology, 20(11), 1137–1150.
Okoye, U.O., & Asa, S. S. (2011). Caregiving and Stress: Experience of People Taking Care of Elderly Relations in South-eastern Nigeria. Arts and Social Sciences Journal; ASSJ-29, 1-9.
Casale, M., Cluver, L., Crankshaw, T., Kuo, C., Lachman, J. M. and Wild, L. G. (2015). Direct and Indirect Effects of Caregiver Social Support on Adolescent Psychological Outcomes in Two South African AIDS-Affected Communities. American Journal of Community Psychology, 55, 336–346.
Al-Gamal, E., & Long, T. (2013). Psychological distress and perceived support among Jordanian parents living with a child with cerebral palsy: A cross-sectional study. Scandinavian Journal of Caring Sciences, 27(3), 624631.
Smith, L., Hill, N., & Kocanovik, R. (2015). Experiences of depression, the role of social support and its impact on health outcomes. Journal of mental health, 24(6), 342-346.
Kudubes, A. A., & Bektas, M., & Ugur, O. (2014). Symptom frequency of children with cancer and parent quality of life in Turkey. Asian Pacific Journal of Cancer Prevention, 15, 3487-3493.
Downloads
Published
How to Cite
Issue
Section
License
Copyright (c) 2017 Advances in Social Sciences Research Journal

This work is licensed under a Creative Commons Attribution 4.0 International License.
