Seeing Each Other Clearly: A Dual Perspective on Providing Healthcare to Neurodivergent People
DOI:
https://doi.org/10.14738/bjhr.1301.19999Keywords:
Autism, ADHD, Neurodivergence, communication, healthcareAbstract
Neurodivergent people face distinctive challenges in Health Care, where environments, routines, and communication styles are often poorly attuned to their needs. This paper, written jointly by a neurotypical physician and a neurodivergent patient, offers unique perspectives on how these dynamics can generate misattunement and mistrust. Drawing on reflective narrative accounts and their analysis through the concepts of epistemic injustice and double empathy issues, the paper shows how behaviours such as silence, detailed explanation, or avoidance of eye contact are easily misinterpreted. Patients may be disbelieved or blamed, while clinicians, under systemic pressures of time and workload, may resort to defensive practices. Addressing these challenges requires valuing difference, adapting responsively, and fostering inclusive communication, supported by system-level reforms that embed co-production, training, and accessible environments. We demonstrate how this can be achieved in clinical practice to the mutual benefit of both neurodivergent people and those who care for them.
References
Croen L, Zerbo O, Qian Y, et al. (2015). The health status of adults on the autism spectrum. Autism, 19(7), 814-823. https://doi.org/10.1177/1362361315577517
Hand B, Angell A, Harris L, et al. (2019). Prevalence of physical and mental health conditions in Medicare-enrolled, autistic older adults. Autism, 24(3), 755-764. https://doi.org/10.1177/1362361319890793
Mason D, Ronald A, Ambler A, et al. (2021). Autistic traits are associated with faster pace of aging: Evidence from the Dunedin study at age 45. Autism Research, 14(8), 1684–1694. https://doi.org/10.1002/aur.2534
Weir E, Allison C, Ong K, et al. An investigation of the diet, exercise, sleep, BMI, and health outcomes of autistic adults. Molecular Autism 12, 31 (2021). https://doi.org/10.1186/s13229-021-00441-x
Hirvikoski T, Mittendorfer-Rutz E, Boman M, Larsson H, Lichtenstein P, Bölte S. Premature mortality in autism spectrum disorder. British Journal of Psychiatry. 2016;208(3):232-238. doi:10.1192/bjp.bp.114.160192
O'Nions E, Lewer D, Peterson I, et al. Estimating life expectancy and years of life lost for autistic people in the UK: a matched cohort study. The Lancet Reg Health Eur 2023, Nov 23:36:100776. doi: 10.1016/j.lanepe.2023.100776
Stewart G, Corbett A, Ballard C, et al. Sleep problems and mental health difficulties in older adults who endorse high autistic traits. Research in Autism Spectrum Disorders Volume 77, September 2020, 101633
Newell V, Phillips L, Jones C, et al. A systematic review and meta-analysis of suicidality in autistic and possibly autistic people without co-occurring intellectual disability. Molecular Autism 14, 12 (2023). https://doi.org/10.1186/s13229-023-00544-7
Cassidy S, Au-Yeung S, Robertson A, et al. Autism and autistic traits in those who died by suicide in England. Brit J Psych (2022) Page 1 - 9. doi: 10.1192/bjp.2022.21
Richards G, Kenny R, Griffiths S, Allison C, Mosse D, Holt R, et al. Autistic traits in adults who have attempted suicide. Mol Autism 2019; 10: 26.
Vivanti G, Lee W, Ventigmiglia J, Tao S, Lyall K, Shea L. Prevalence of dementia among US adults with autism spectrum disorder. JAMA Netw Open. 2025;8(1):e2453691. doi:10.1001/jamanetworkopen.2024.53691
Mason D, Ingham B, Urbanowicz A. et al. A Systematic Review of What Barriers and Facilitators Prevent and Enable Physical Healthcare Services Access for Autistic Adults. J Autism Dev Disord 49, 3387–3400 (2019). https://doi.org/10.1007/s10803-019-04049-2
George, A. (2022) The Connections between Attention-Deficit/Hyperactivity Disorder and Levels of Criminal Behavior among Adults. Open Journal of Social Sciences, 10, 1-45. doi: 10.4236/jss.2022.102001. Scholar Publishing
Zhang L, Zhu N, Sjolander A et al. ADHD drug treatment and risk of suicidal behaviours, substance misuse, accidental injuries, transport accidents and criminality. BMJ 2025; 390:e083658
Scheydt, S., Müller Staub, M., Frauenfelder, F., Nielsen, G. H., Behrens, J., & Needham, I. (2017). Sensory overload: A concept analysis. International journal of mental health nursing, 26(2), 110-120.
Malik-Soni N, Shaker A, Luck H, et al. Tackling healthcare access barriers for individuals with autism from diagnosis to adulthood. Pediatr Res. 2022 Apr;91(5):1028-1035. doi: 10.1038/s41390-021-01465-y.
Mansour H, Gillions A, Brown J, et al. (2024). ‘It’s designed for someone who is not me’: A reflexive thematic analysis of the unmet healthcare support needs in UK autistic adults aged 65 years and over. Autism, 29(3), 754-765. https://doi.org/10.1177/13623613241291081
Anonymous author. Uncovering my hidden autism. BMJ 2025; 390: r1359
Tamilson B, Eccles J, Shaw S. The experience of autistic adults who were previously diagnosed with borderline or emotionally unstable personality disorder: a phenomenological study. Autism 2024; 29: 504-17.
Ditrich I, Philipsen A, Swantje M. Borderline personality disorder and attention deficit hyperactivity disorder revisited – a review update on common grounds and subtle distinctions. Bord Personal Dis Emot Disregul 2021, 8, 22
Milton DE. On the ontological status of autism: The ‘double empathy problem’. Disability & society. 2012 Oct 1;27(6):883-7.
Shaw S, Carravallah L, Johnson M, et al. Barriers to healthcare and a ‘triple empathy problem’ may lead to adverse outcomes for autistic adults: a qualitative study Autism 2023; Oct 17;28 (7):1746-1757.
Zhang L, Qiu Y, Zhang N, Li S. (2020). How difficult doctor–patient relationships impair physicians’ work engagement: The roles of prosocial motivation and problem-solving pondering. Psychological Reports, 123(3), 885–902.
Kelly CA. The dangers of being a good Samaritan. Published in ‘Voice of Doctors’ October 2023a Blog - Protecting Medics (voiceofdoctors.org)
Beale C. Magical thinking and moral injury: exclusion culture in psychiatry. BJPsych bulletin. 2022 Feb;46(1):16-9.
Beaglehole B, Thwaites B, Kew B, Mulder R. The changing doctor–patient relationship in psychiatry: observations on recent trends in autism, attention-deficit hyperactivity disorder, gender dysphoria and mental distress. The British Journal of Psychiatry. 2025;227(1):439-441. doi:10.1192/bjp.2024.243
Berney T, Bevan R, Brugha T et al. The psychiatric management of adults with autism. Royal College of Psychiatrists Report. July 2020. CR 228, 5.2 p37-40 college-report-cr228.pdf
Kelly C. Surviving a referral to the GMC. ‘RCP Commentary’ 2023. December 3rd 2023b, pages 32-34.Comm Dec2023 - FlowPaper FlipBook
Bemme D, Roberts T, Ae-Ngibise KA, et al. Mutuality as a method: advancing a social paradigm for global mental health through mutual learning. Social psychiatry and psychiatric epidemiology. 2024 Mar;59(3):545-53.
Downs J. From laboratory to life: Integrating diverse ways of knowing in mental health science. Brain and Neuroscience Advances. 2025a Apr;9:23982128251327709. Scholar Publishing
Downs J. Beyond the methodological binary: coproduction as the third pillar of mental health science. BMJ Mental Health. 2025b;28:e301807. https://doi.org/10.1136/bmjment-2025-301807
Kulmala M, Venäläinen S, Hietala O, et al. (2024) Lived experience as the basis of collaborative knowing: Inclusivity and resistance to stigma in co-research. International Journal of Qualitative Methods.
Lindsay GM, Schwind JK. Narrative inquiry: Experience matters. Canadian Journal of Nursing Research. 2016 Mar;48(1):14-20.
Connelly FM, Clandinin DJ. Narrative inquiry. Handbook of complementary methods in education research. Routledge; 2012. pp. 477–87.
Karcher K, McCuaig J, King-Hill S. (Self-) reflection/reflexivity in sensitive, qualitative research: A scoping review. Int J Qualitative Methods. 2024;23:16094069241261860.
Liberati EG, Gorli M, Moja L, Galuppo L, Ripamonti S, Scaratti G. Exploring the practice of patient-centred care: the role of ethnography and reflexivity. Soc Sci Med. 2015;133:45–52. https://doi.org/10.1016/j.socscimed.2015.03.050.
Fricker M (2007). Epistemic Injustice: Power and the Ethics of Knowing. Oxford: Oxford University Press.
Ritunnano R. Overcoming hermeneutical injustice in mental health: A role for critical phenomenology. Journal of the British Society for Phenomenology. 2022 Jul 3;53(3):243-60.
Mooney R, Dempsey C, Brown BJ, Keating F, Joseph D, Bhui K. Using participatory action research methods to address epistemic injustice within mental health research and the mental health system. Frontiers in public health. 2023 Mar 21;11:1075363.
Chapman R, Carel H. Neurodiversity, epistemic injustice, and the good human life. Journal of Social Philosophy. 2022 Mar 1
Legault M, Bourdon JN, Poirier P. From neurodiversity to neurodivergence: The role of epistemic and cognitive marginalization. Synthese. 2021 Dec;199(5):12843-68.
Catala A. Nothing About Us Without Us: Identifying Principles of Justice For Emancipatory Participatory Research in the Context of Neurodiversity. Kennedy Institute of Ethics Journal. 2024;34(2):311-31.
Groot B, Haveman A, Abma T. Relational, ethically sound co-production in mental health care research: epistemic injustice and the need for an ethics of care. Critical Public Health. 2022 Mar 15;32(2):230-40.
Downs J, Adams M, Federici A, Sharpe SL, Ayton A. Equity in eating disorders: a dialectical approach to stigma, expertise, and the coproduction of knowledge. Journal of Eating Disorders. 2025 Feb 17;13(1):31.
Kapuralalage TN, Chan HF, Dulleck U, Hughes JA, Torgler B, Whyte S. Clinical decision-making: Cognitive biases and heuristics in triage decisions in the emergency department. The American Journal of Emergency Medicine. 2025 Jun 1;92:60-7.
Ominyi J, Eze U, Alabi A, Nwedu A. Evidence-Based Nursing in Action: A Focused Ethnographic Case Study of Knowledge Use in Acute Care. Next Research. 2025 Jul 5:100584.
Humphries N, Creese J, McDermott AM, Colleran G, McDermott C, Byrne JP. ‘That's just how medicine is': A remote ethnographic study of Ireland's failure to meet the core work needs of its hospital doctors. SSM-Qualitative Research in Health. 2024 Jun 1;5:100392.
Simpson S. Creating accessible healthcare environments for people with autism. Nursing Times. 2020 Jan;116(1):48-50. Scholar Publishing
Straus J, Coburn S, Maskell S, Pappagianopoulos J, Cantrell K. Medical encounters for youth with autism spectrum disorder: a comprehensive review of environmental considerations and interventions. Clinical Medicine Insights: Pediatrics. 2019 Apr;13:1179556519842816
Greenwood E, Cooklin A, Barbaro J, Miller C. Autistic patients' experiences of the hospital setting: A scoping review. Journal of Advanced Nursing. 2024 Mar;80(3):908-23.
Davenport S, Alshawsh M, Lee C, et al. The Meaning of Autism Friendly in Hospital Settings: A Scoping Review of the Autism Community’s Perspectives. Journal of Autism and Developmental Disorders. 2025 Mar 19:1-6.
Kidd IJ, Spencer L, Carel H. Epistemic injustice in psychiatric research and practice. Philosophical Psychology. 2025 Feb 17;38(2):503-31.
Kim JY, Choi MJ, Ha S, et al. Association between autism spectrum disorder and inflammatory bowel disease: A systematic review and meta-analysis. Autism Res. 2022 Feb;15(2):340-352. doi: 10.1002/aur.2656.
Downs J and Kelly C. Improving Understanding, Recognition and Treatment for Men With Anorexia Nervosa. Brit J Hosp Med 2025, June 5th. Volume 86, Number 6. https://doi.org/10.12968/hmed.2024.0643
Hunt, D. F. (2026). Holding duality in mental health research and practice: towards the meaningful integration of dual-positioned researchers. Critical Public Health, 36(1). https://doi.org/10.1080/09581596.2026.2619251
Gray L, McNeill B, Pecora L, Macfarlane S, Hayley A, Hitch D, Evans S. Navigating neurodivergence: A scoping review to guide health professions educators. Medical Education. 2025 Mar 25.
Nawaz S, Zahra M, Fiaz M. The Hidden Cost of Fitting In: Camouflaging in High-Pressure Healthcare. Open Access Public Health and Health Administration Review. 2024 Dec 31;3(1):74-84.
Bernard S, Teasdale N, Harris C, Girdler S. (2025). “After this presentation, I feel more confident caring for autistic patients”: The impact of neurodivergent doctors educating hospital staff about neurodiversity. Neurodiversity, 3. https://doi.org/10.1177/27546330251317807
Brown, D. Procyshyn, TL. Neurodiversity in custody: Screening results for ADHD and autistic traits in individuals arrested by the London Metropolitan Police. Criminal Behaviour and Mental Health; 10 Dec 2025; 10.1002/cbm.70018
Wainwright, L., James., Powell., C. (2024) Neurodivergence, specifically ADHD, in prison – a conversation. Prison Service Journal, Issue 2
Kelly C, Dixon E, Martin R. Recognising and reversing the increased morbidity and mortality associated with neurodivergent conditions. 2025. RCP. Finalists | RCP Medical Care
Doherty M, McCowan S, Shaw SC. Autistic SPACE: a novel framework for meeting the needs of autistic people in healthcare settings. British Journal of Hospital Medicine. 2023; 84(4).
Kelly C, Taylor R, Martin R, Doherty M. Recognising and responding to physical and mental health issues in neurodivergent girls and women. BJHM 2nd April 2024; Volume 25, issue 4. https://doi.org/10.12968/hmed.2023.0337
Downloads
Published
How to Cite
Issue
Section
License
Copyright (c) 2026 Clive Kelly, James

This work is licensed under a Creative Commons Attribution 4.0 International License.